Bøger i Cambridge Bioethics and Law serien

Research using genetic data must be properly regulated. Regulation that does not take account of the public interest in research and privacy protection might undermine the legitimacy of the regulatory environment. Using genetic data as an example, Mark Taylor explores the limitations of the current law of data protection.

Ethical Problems and Genetics Practice provides a rich, case-based account of the ethical issues arising in the genetics clinic and laboratory. By analysing a wide range of evocative and often arresting cases from practice, Michael Parker provides a compelling insight into the complex moral world of the contemporary genetics professional and the challenges they face in the care of patients and their families. This book is essential reading for anyone interested in the ethical issues arising in everyday genetics practice. Ethical Problems and Genetics Practice is also a sustained engagement with the relationships between bioethics and social science. In proposing and exemplifying a new approach to bioethics, it makes a significant contribution to debates on methods and interdisciplinarity and will therefore also appeal to all those concerned with theoretical and methodological approaches to bioethics and social science.

How best to manage risk involving multi-valued human biological materials is the overarching theme of this book, which draws on the sourcing and supply of blood as a case study. Blood has ethical, social, scientific and commercial value. This multi-valuing process presents challenges in terms of managing risk, therefore making it ultimately a matter for political responsibility. This is highlighted through an examination of the circumstances that led to HIV blood contamination episodes in the US, England and France, as well as their consequences. The roles of scientific expertise and innovation in managing risks to the blood system are also analysed, as is the increased use of precautionary and legal strategies in the post-HIV blood contamination era. Finally, consideration is given to a range of policy and legal strategies that should underpin effective risk governance involving multi-valued human biological materials.

The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.

A collection of bioethical case studies that shows why ethical behaviour matters more than bioethics commentary. Will be of interest to those working and teaching in bioethics, health law, research ethics, public policy, medical technology and pharmaceutical development, governmental affairs, and the history and philosophy of science and medicine.

Continuous sedation is becoming increasingly common in end-of-life care. It raises many concerns, though, especially regarding reducing or removing consciousness, withholding hydration and whether it amounts to 'slow euthanasia'. In this book, ethicists, clinicians and lawyers address these concerns and discuss various justifications and guidelines for the practice.

The conscription of criminal law into moral controversy and the (perceived) rise in criminal investigations of medical errors set the backdrop for this analysis of the relationship between medicine, bioethics and criminal law. Includes case studies on abortion, end of life and the separation of conjoined twins.

Personal genetic information is increasingly accessible. Consumers can obtain and share information through DNA tests purchased online. Databases make personal details available for research or criminal investigation. This book examines the right to know or not to know genetic information about yourself and others.

Personal genetic information is increasingly accessible. Consumers can obtain and share information through DNA tests purchased online. Databases make personal details available for research or criminal investigation. This book examines the right to know or not to know genetic information about yourself and others.

This book provides a comprehensive and approachable overview of Medicare under the Affordable Care Act (ACA). The author illustrates how the ACA addresses the long-term fiscal and demographic challenges facing Medicare, as well as the potential for Medicare to become a single-payer system.

This volume considers historical comparisons and the current laws in jurisdictions such as Canada, the United Kingdom and Norway in order to explore the question of if and when it is appropriate to criminalise the transmission of contagion.

Research in bioethics is becoming increasingly interdisciplinary, and researchers are turning to novel methodologies that combine the benefits of both theoretical and empirical research. Contributions in this volume are written by experts in the field, bringing together the most recent developments in methodological thinking and offering new insights into established approaches.

In times of global economic and political crises, the notion of solidarity is gaining new currency. Exemplified by three case studies from medicine and health, this book shows how solidarity can make a difference in how we frame problems in biomedicine, and help develop innovative solutions.

Continuous sedation is becoming increasingly common in end-of-life care. It raises many concerns, though, especially regarding reducing or removing consciousness, withholding hydration and whether it amounts to 'slow euthanasia'. In this book, ethicists, clinicians and lawyers address these concerns and discuss various justifications and guidelines for the practice.

A comprehensive resource on health information technology and its legal, ethical, and policy implications, focusing on the intersection of law and policy. Combining exhaustive research with accessible writing, it will appeal to readers with diverse levels of expertise, including academics, students, health care providers, attorneys, and policy-makers.