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Everyone''s Parkinson''s disease path is a unique journey to the moments before passing. These moments are almost always shared with others, especially caretakers, family and dear friends. Here one may find oneself asking the same question Ed faced throughout his life on this planet: "What happens when I can no longer be conscious, but my body and altered mind live on?" This book brings the reader through Ed and Claire''s journey to the edge of life, beyond Parkinson''s disease.- Claude Pepin, Spring, 2021
With authenticity and honesty, Claire Blatchford writes from the heart of her experiences in facing the challenges of living with Parkinson's Disease as it has been manifesting in the body of her husband, Ed. In so doing, she gives us a book that is not only informative and helpful for anyone else navigating these same challenges but one that is healing as well.I believe this book offers the invaluable gift to anyone dealing with Parkinson's, either directly as a patient or indirectly as a caregiver, of being seen, heard, and understood. It leaves you feeling that you're not alone. This in itself makes this book worthwhile for anyone dealing with this disease.But Claire does more than this. Through the largeness of her own spirit, she enables any of us to feel, whether Parkinson's Disease is part of our life or not, that we are not alone, period. Claire is a beautiful writer whose skill with words and images I admire and envy, but she is more than this. In showing us the spirit we all have within us, connecting us to the wholeness of life, Claire is a healer, which makes this book a healer's gift.
Deaf at age six, the author was educated with speech lessons, speech reading, and hearing aids. At the age of 62 she underwent a cochlear implantation. In this memoir, she describes living with a cochlear implant, including her realization that amplification and comprehension are not the same.
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