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If you are reading this, the chances are that you either have lymphoedema (lymphedema), know someone that does, or work in the medical profession caring for people with this lifelong and sometimes debilitating disease.Lymphoedema affects millions of people around the world, yet it is often a lottery whether the appropriate level of healthcare is received. That can leave a person living with this lifelong disease feeling desperate, neglected, and alone. You are NOT alone! Advocates Amy Rivera and Matt Hazledine are joined by 34 people living with lymphoedema from 14 countries from around the world, who share their personal experiences and top tips, to help you to live better with lymphoedema.Many of us experience a varying level of professional care from medical experts IF you have been successful in getting a diagnosis. Many are still seeking a diagnosis, which means that they are unlikely to be receiving the appropriate health care and advice on self-management techniques, which is important during the early stages of lymphoedema.This can result in people feeling helpless, alone and desperate. Lymphoedema can be extremely challenging to both physical and mental health, especially when coming to terms with the diagnosis and adapting to this life-changing condition.Some people are willing to talk about their health issue, while others keep it hidden. Some people confidently wear their compression garments in public, while others hide it under baggy clothes and some people just don't or can't go out at all.This book includes personal experiences and tips from 34 people from 14 different countries. Some have primary and some have secondary lymphoedema, effecting their arms, legs, trunk, head, neck, and pubic area. They were willing to share their story to reassure others they are not alone. Some guests have included their contact details, so, if you relate to their circumstances, you can connect with them directly.
If you have lymphoedema or know someone who does, this book will provide invaluable information from the experts and useful tips to help you better manage the condition, improving your quality of life and mental wellbeing. Lymphoedema, a chronic and often debilitating lifelong disease that can have a detrimental effect on both physically and mentally.Matt Hazledine shares his personal experiences and useful tips, plus authoritative information and guidance from over 20 medical professionals and experts, with the aim to help you to live better with lymphoedema. We cover the four cornerstones of treatment: Compression, Skin Care, Healthy Lifestyle & Movement and Lymphatic Drainage.With lymphoedema knowledge is power, and you will learn about; Finding the right therapist, Help and support networks, Self-management techniques, Therapies, products & surgery and Research to find a cure.Whether you read the whole book in one go or turn to certain chapters that focus on specific subjects, this is a must have lymphoedema bible that can be referred to again in the future, when needed. By buying this book, you will help to raise money to fund research in the hope of finding a cure for lymphoedema. 25% of profits from book sales will be donated to The Lymphoedema Research Fund managed by St George's Hospital Charity. Join me in the quest to fund research, so scientists can find a cure to help future generations to live better without lymphoedema.I wish I'd had a book like this when I was diagnosed with lymphoedema 10 years ago.
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