Bøger udgivet af Baby Hearts Press

This is an anthology of stories, poems, and artwork by people born with congenital heart defects (CHDs). These authors share their stories of hope on several themes. This volume includes the following themes: Works of Art, Heart Warrior Authors, and Beyond My CHD. Since CHDs are the #1 birth defect around the world, people across the globe are living with birth defects that could literally end their lives in a heartbeat. What does it mean to live with tetralogy of Fallot, transposition of the great arteries, hypoplastic left (or right) heart syndrome, single ventricle, atrial septal defect, ventricular septal defect, or a Fontan heart? How does having a CHD affect your ability to become a mother? Since most of the authors in this book were born with complex congenital heart defects and have at least one open-heart surgery, they have a unique connection with one another. The way the authors describe their experiences is eerily similar, despite having been born in different decades, in different locations, and receiving treatment at various hospitals across the globe. The commonality is their heart defect and their relationship with their own mortality. This book is co-edited by Anna Jaworski, the mother of an adult child with a critical congenital heart defect, and Megan Tones, a heart warrior--a term we reserve for people born with a CHD. Together, they have edited stories of strength and resilience, hope and despair, and success and triumph. Besides being an editor, Megan Tones is a contributor to the book. Her contributions show her capacity for understanding what other authors have shared. Many of the authors have shared stories of the trauma they have endured in living with a chronic, life-threatening condition. These stories are sure to bring comfort and hope to members of the congenital heart defect community.

This is an anthology of stories, poems, and artwork by people born with congenital heart defects (CHDs). These authors share their stories of hope on several themes. This volume includes the following themes: Service, Motherhood, and Facing My Mortality. Since CHDs are the #1 birth defect around the world, people across the globe are living with birth defects that could literally end their lives in a heartbeat. What does it mean to live with tetralogy of Fallot, transposition of the great arteries, hypoplastic left (or right) heart syndrome, single ventricle, atrial septal defect, ventricular septal defect, or a Fontan heart? How does having a CHD affect your ability to become a mother? Since most of the authors in this book were born with complex congenital heart defects and have at least one open-heart surgery, they have a unique connection with one another. The way the authors describe their experiences is eerily similar, despite having been born in different decades, in different locations, and receiving treatment at various hospitals across the globe. The commonality is their heart defect and their relationship with their own mortality. This book is co-edited by Anna Jaworski, the mother of an adult child with a critical congenital heart defect, and Megan Tones, a heart warrior--a term we reserve for people born with a CHD. Together, they have edited stories of strength and resilience, hope and despair, and success and triumph. Besides being an editor, Megan Tones is a contributor to the book. Her contributions show her capacity for understanding what other authors have shared. Many of the authors have shared stories of the trauma they have endured in living with a chronic, life-threatening condition. These stories are sure to bring comfort and hope to members of the congenital heart defect community.

This is an anthology of stories, poems, and artwork by people born with congenital heart defects (CHDs). These authors share their stories of hope on several themes. This volume includes the following themes: Growing Up with Congenital Heart Defects, How My CHD Defines Me, Being Active with CHD, and CHDs Around the Globe. Since CHDs are the #1 birth defect around the world, people across the globe are living with birth defects that could literally end their lives in a heartbeat. What does it mean to live with tetralogy of Fallot, transposition of the great arteries, hypoplastic left (or right) heart syndrome, single ventricle, atrial septal defect, ventricular septal defect, or a Fontan heart? How does having a CHD affect your ability to become a mother? Since most of the authors in this book were born with complex congenital heart defects and have at least one open-heart surgery, they have a unique connection with one another. The way the authors describe their experiences is eerily similar, despite having been born in different decades, in different locations, and receiving treatment at various hospitals across the globe. The commonality is their heart defect and their relationship with their own mortality. This book is co-edited by Anna Jaworski, the mother of an adult child with a critical congenital heart defect, and Megan Tones, a heart warrior--a term we reserve for people born with a CHD. Together, they have edited stories of strength and resilience, hope and despair, and success and triumph. Besides being an editor, Megan Tones is a contributor to the book. Her contributions show her capacity for understanding what other authors have shared. Many of the authors have shared stories of the trauma they have endured in living with a chronic, life-threatening condition. These stories are sure to bring comfort and hope to members of the congenital heart defect community.

In this inspiring memoir, Emily Falcon chronicles her lifelong journey with a congenital cardiac condition. In 1982, at seven weeks old, she had a heart attack that destroyed forty percent of the left side of her heart. This was her entry into a world of multiple cardiac procedures, surgeries, and hospitalizations, and a later diagnosis of glaucoma. Balancing these serious conditions defined her life.Falcon's memoir is a story of survival and how her physical situation shaped and limited her. She intends this story to be a helpful resource to families, caregivers, and physicians who want to gain insight into a patient's point of view.In 2017, after a lifetime of feeling that nothing could ever change, Falcon had a second open-heart surgery, which allowed her to participate in a 5K race a mere eight months later. She was no longer stuck on the sidelines. Drawing from her extensive life experiences, Falcon recounts how she found a way to surmount obstacles that people who live with incurable medical conditions and their supporters might face. In the book, Falcon describes how she has remained courageous and pragmatic in her mission to stay alive. She encourages her readers to advocate for themselves, believe in their abilities, never be afraid to test their boundaries, and feel motivated to make changes in their lives.