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My wife, Sally, suffered and died after a decade-long struggle with dementia. Her experiences retold here, along with my own as her caregiver, can help people making a similar end-of-life journey. To assist them, I propose and discuss a humane way to deal with dementia at the end of life, one that Sally believed in and would have enthusiastically endorsed for herself: the Right to Die. Because Sally could not exercise her right to die, we had to endure her traumatic final years in memory care as she struggled with her steadily worsening affliction, forgetting who she was and what gave meaning to her life, with the result that both she and I were relegated to the ranks of the forgotten. The book includes a "Tool Box" of resources to assist individuals who are seeking help and support in their caretaking endeavors. I hope this book will stimulate readers to think differently about how we die and how we should be allowed to die.
Psychische Erkrankungen sind eine gesamtgesellschaftliche Herausforderung mit vielen Facetten und müssen als solche auch interdisziplinär betrachtet werden. Der vorliegende Sammelband setzt genau hier an und hat das Ziel, ein differenziertes Bild über die Bedeutung psychischer Erkrankungen und den gesellschaftlichen Umgang mit ihnen zu zeichnen. Die vielfältigen Fragen, die sich dabei stellen, werden durch Vertreter*innen aus den Gesundheits-, Sozial- und Geisteswissenschaften erörtert. Dies beinhaltet theoretische sowie praktische Perspektiven mit historischen, aktuellen und zukunftsperspektivischen Schwerpunkten, die sich insgesamt dem Ziel widmen, aktuelle Herausforderungen aufzuzeigen und einen Beitrag zur Verbesserung der psychischen Gesundheitsversorgung in den Bereichen der Krankheitsbehandlung, Prävention und Gesundheitsförderung zu leisten.
This book considers the intellectual property protection of clinical test data that has been submitted to governments, in particular through test data exclusivity rights. It focuses on how these intellectual property rights first emerged in the early 1980s, how they have globalised over the past four decades, and what impact they have had upon access to medicine. This book makes a number of significant and original contributions to the literature around the protection of submitted test data. First, the book draws upon the theory of regulatory globalisation to provide an explanation of how intellectual property rights in submitted pharmaceutical test data have become nearly ubiquitous in the legal systems of most major economies. Second, through a comprehensive analysis and synthesis of provisions on the protection of submitted test data in free trade agreements, as well as a comparison of a range of national approaches to the protection of submitted test data, it reveals the broader global regulatory pattern that has given rise to these intellectual property rights. Third, by analysing data on drug approvals in the US, it provides an empirical insight into the impact of test data exclusivity in national pharmaceutical markets. Fourth, the book covers a number of developments regarding test data exclusivity that have occurred as a result of responses to the COVID-19 pandemic, both at the national level as well as at the World Trade Organisation (WTO). This book will appeal to academics researching the intersection of intellectual property and the life sciences, civil society activists working to promote access to medicines, and students (particularly those at the post-graduate level) studying the relationship between intellectual property and medicine.
This book presents an important reflection on the concept and limits of the Fundamental Right to Health as opposed to a supposed ¿Right to Hope¿ in the context of the treatment of patients with advanced cancer. The central idea of the work is the question of whether and to what extent patients with advanced cancer have the right to legally demand a palliative treatment whose efficacy has not been proven from the point of view of the desired objectives. The book demonstrates how hope cannot be subject to legal protection and, also, that, even if theoretical-legal reasons were not sufficient for the absence of an abstract right to hope, ethical reasons would be. The work concludes that the best palliative care, rather than palliative treatment, guarantees the best right to health for advanced cancer patients, especially in terminal cases.In addition to this theoretical discussion, the book also presents the results of a qualitative research the author conducted with 48 advancedcancer patients in Brazil and Germany to investigate their expectations towards chemotherapy. This study has confirmed that many patients decide to undergo often toxic and exhausting treatments, unrealistically believing that their cancer is curable or that, as long as they continue with a course of chemotherapy, cancer may be beaten. Palliative Treatment for Advanced Cancer Patients: Can Hope Be a Right? will be of interest to health professionals and social workers working with advanced cancer patients, as well as to researchers in the fields of public health, bioethics, medical ethics and health law, especially those interested in the growing interdisciplinary field of end-of-life decision-making.
A readable and practical guide to how the law applies to people with dementia, from diagnosis to end-of-life. This book will appeal to clinicians and practitioners that work with patients with dementia, including psychiatrists, primary care physicians, nurses, social workers and advocates.
This book provides the first comprehensive, historically based, philosophical interpretations of two texts of Thomas Percival¿s professional ethics in medicine set in the context of his intellectual biography. Preceded by his privately published and circulated Medical Jurisprudence of 1794, Thomas Percival (1740-1804) published Medical Ethics in 1803, the first book thus titled in the global histories of medicine and medical ethics. From his days as a student at the Warrington Academy and the medical schools of the universities of Edinburgh and Leyden, Percival steeped himself in the scientific method of Francis Bacon (1561-1626). McCullough shows how Percival became a Baconian moral scientist committed to Baconian deism and Dissent. Percival also drew on and significantly expanded the work of his predecessor in professional ethics in medicine, John Gregory (1724-1773). The result is that Percival should be credited with co-inventing professionalism in medicine with Gregory. To aid and encourage future scholarship, this book brings together the first time three essential Percival texts, Medical Jurisprudence, Medical Ethics, and Extracts from the Medical Ethics of Dr. Percival of 1823, the bridge from Medical Ethics to the 1847 Code of Medical Ethics on the American Medical Association. To support comparative reading, this book provides concordances of Medical Jurisprudence to Medical Ethics and of Medical Ethics to Extracts. Finally, this book includes the first Chronology of Percival¿s life and works.
The microneedle field has been expanding exponentially with innovative designs and various applications, thus capturing the interest of academic industry and regulatory sectors.Microneedles: The Future of Drug Delivery equips readers with a comprehensive understanding of microneedles: from percutaneous absorption to microneedles production, characterization, applications in drug delivery and diagnosis, to practical perspectives on the development, manufacturing, regulatory issues, and commercialization of microneedles. This book is written by a single author and thus provides complex information in a simple, elegant, and cohesive style.The book is intended for graduate students, researchers, scientists, and engineers working in the pharmaceutical, medical, cosmeceutical, and biotechnology industry.
Health and healthcare are vitally important to all of us, and academic interest in the law regulating health has, over the last 50 years, become an important field of academic study. An analysis of the development of, changes in, and scope of health law and ethics to date, is both timely and of interest to students and scholars alike, along with an exploration of its likely future development. This work brings together contributions from leading and emerging scholars in the field. Each contributor has been invited to select and analyse a 'leading work', which has for them shed light on the way that health law and ethics has developed. The chapters are both autobiographical, reflecting upon the works that have proved significant to contributors, and also critical analyses of the current state of the field. This collection also includes a specially written Introduction and Conclusion, which critically reflect upon the development of health law and ethics and its likely future developments in the light of the reflections by contributors on their chosen leading works. The book will be of interest to students, teachers, and researchers in health law and ethics, as it provides critical discussions and assessments of some of the leading scholarship in the field.
Integral Psychedelic Therapy is a groundbreaking, evidence-based collection that explores how psychedelic medicine can be incorporated into contemporary psychotherapy.This book builds on current psychedelic research by providing an in-depth articulation of the practice of psychedelic therapy, weaving together a variety of complementary therapeutic frameworks, case examples, and practical guidance for cultivating a highly effective, ethically grounded, integral approach. Chapters by a diverse set of practicing psychotherapists and leading researchers aim to provide practitioners with a method that centers liberation of all dimensions of being through intersectional, client-centered, trauma-informed, and attachment-focused practices, alongside thoughtful attunement to the relational, somatic, imaginal, cultural, and transpersonal dimensions of healing.Integral Psychedelic Therapy will be essential reading for psychotherapists in practice and in training as well as those seeking personal healing and holistic transformation.
This book is a ground-breaking, evidence-based collection that explores how psychedelic medicine can be incorporated into contemporary psychotherapy. It builds on current psychedelic research by providing an in-depth articulation of the practice of psychedelic therapy, therapeutic frameworks, and case examples.
With the emergence of additive manufacturing, mass customization of biomaterials for complex tissue regeneration and targeted drug delivery applications is possible. This book emphasizes the fundamental concepts of biomaterials science, their structure-property relationships and processing methods, and biological responses in biomedical engineering. It focuses on recent advancements in biomedical applications, such as tissue engineering, wound healing, drug delivery, cancer treatments, bioimaging, and theranostics.This book:Discusses design chemistry, modification, and processing of biomaterialsDescribes the efficacy of biomaterials at various scales for biological response and drug deliveryDemonstrates technological advances from conventional to additive manufacturingCovers future of biofabrication and customized medical devicesThis volume serves as a go-to reference on functional biomaterials and is ideal for multi-disciplinary communities such as students and research professionals in materials science, biomedical engineering, healthcare, and medical fields.
Textile-based compression therapy is used in a range of applications, such as for athlete and sport recovery, enhanced proprioception, compression spacesuits, and in the management of chronic diseases. This book provides an overview of compression devices and products, testing methods to measure the properties of materials used in compression devices, and design considerations based on dynamic body measurements. It also includes a model for predicting pressure and details the challenges in applying compression for various applications.Chapters in this book:Discuss the science behind compression therapyDelve into the materials used in compression devices and products and assesses their performance based on their properties and structureCover theoretical modeling to predict the pressure exerted by compression devices on the human bodyConsider compression textile design based on dynamic body measurementsThis book is aimed at professionals and researchers in textile engineering, materials engineering, biotechnology, and the development of textile-based compression devices and products, and at such medical practitioners as phlebologists.
This new volume in the Reproductive Medicine for Clinicians series of the International Academy of Human Reproduction (IAHR) focuses on current hot topics in the field, their ethical and legal aspects and their impact on society.It covers topics such as Covid-19, religious and philosophical controversies, possibilities that new technologies offer, human reproductive cloning problems, future challenges related to the heritable gene editing, therapeutic use of stem cells and stem cell factors and the role of receptors in steroids hormone action.This volume also offers an analysis of important innovations and new possibilities such as the use of artificial intelligence in reproductive medicine and the future of prenatal testing. The volume also discusses the issues of pregnancies in advanced paternal age, ethical and legal aspects of gametes donation, sex preselection, surrogate motherhood and infertility in overweight or obese PCOS patients. Chapters on the ethicaland legal aspects of fertility preservation in woman, in children with cancer, and in patients sparing treatments in gynecological oncology are also included. This new volume in the series is a valuable resource for gynecologists, obstetricians, endocrinologists, general practitioners and all specialists dealing with reproductive health.
This is the first book published that focuses on competition law and policy in the Japanese pharmaceutical sector. It consists of chapters written and edited by academics who research the industry from various perspectives, including economics, competition law, pharmaceutical regulations, and intellectual property law. Competition policies involving pharmaceutical products attract attention from academics and policymakers worldwide. The pharmaceutical industry is regulated by drug laws that vary from country to country and are affected by differing practices and industrial structures. The book begins by examining drug regulations and trade practices in the industry that are peculiar to Japan and its healthcare system. It then presents the Japanese Antimonopoly Act and cases involving it, and discussions of current competition law issues in the Japanese pharmaceutical industry. The book also discusses innovation and intellectual property and economic analyses of pharmaceutical regulations and drug discovery. The chapters include comparative studies on Japanese regulations vs. those in the European Union and the United States.Japan is one of the biggest pharmaceutical markets in the world. With this in mind, the book provides "one-stop shopping" for anyone interested in pharmaceutical regulations in the country. Covering the basics but extending to in-depth explorations of complex problems, this book appeals not only to students and academics, pharmaceutical companies and regulators, but also to those dealing with real-world policy issues that encompass competition policy, intellectual property, and pharmaceutical regulation.Chapter 11 is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com
Dieses Buch untersucht die rechtlichen Fragen, die sich im Rahmen der ärztlichen Behandlung transidenter und intersexueller Minderjähriger stellen. Im ersten Teil des Werkes werden die medizinisch-biologischen Grundlagen von Transidentität und Intersexualität sowie der medizinische und gesellschaftliche Umgang mit beiden Phänomenen dargestellt. Anschließend folgt eine Auseinandersetzung mit der Bedeutung des Geschlechts im Recht und der personenstandrechtlichen Behandlung transidenter und intersexueller Personen. Im darauffolgenden Hauptteil des Werkes werden zunächst die allgemeinen Voraussetzungen rechtmäßigen ärztlichen Handelns analysiert und sodann auf die speziellen Fallgruppen der Transidentität und Intersexualität angewendet, wobei ein besonderes Augenmerk auf die Indikationsstellung und die Einwilligung durch einen Minderjährigen selbst beziehungsweise durch die sorgeberechtigten Eltern gelegt wird. Zudem erfolgt eine vertiefte Analyse des § 1631e BGB. Schließlich wird dierechtliche Behandlung beider Fallgruppen unter Berücksichtigung der bestehenden tatsächlichen Unterschiede in einen Vergleich gesetzt und die Frage erörtert, ob die aktuelle Rechtslage den jeweiligen spezifischen Anliegen beider Fallgruppen gerecht wird.
How Big Pharma failed to end a pandemic, and what it tells us about the global economy
Der Band ¿Facetten von Gesundheitskompetenz in einer Gesellschaft der Vielfalt¿ zeichnet ein vielseitiges Bild über die Bedeutung von Gesundheit und Gesundheitskompetenz in einer Gesellschaft, die von zunehmender Diversität, digitaler Transformation und immer leistungsfähigerer Medizin geprägt ist. Gesundheitskompetenz, also Gesundheitsinformationen finden, verstehen, beurteilen und anwenden zu können, ist ein Zusammenspiel von individuellen Fähigkeiten und institutionellen Anforderungen. Wie können Gesundheitsinformationen aufbereitet werden, um für alle Menschen angemessen zugänglich und verständlich zu sein? Woran erkennen wir gute Gesundheitsinformationen? Wie können VertreterInnen unterschiedlicher Gesundheitsprofessionen selbstbestimmte Gesundheitsentscheidungen fördern? Diese und anderen Fragen werden u.a. aus gesundheitspsychologischer, soziologischer und ethischer Perspektive beleuchtet. Die AutorInnen geben Einblicke in die aktuelle Forschung, stellen ausgewählte Arbeiten vor und laden zur Reflexion über unseren Umgang mit Gesundheit und Gesundheitsinformationen ein.
Dies ist ein Open-Access-Buch.Trotz des schnellen Wachstums des Anteils der Bevölkerung in einem Alter ab 80 Jahren an der Gesamtbevölkerung ist das Wissen über diese Bevölkerungsgruppe bislang gering. Zwar gibt es thematisch, methodisch und regional spezifische Studien, jedoch keine repräsentative Erfassung der Lebenssituation und Lebensqualität dieser Altersgruppe für den gesamtdeutschen Raum. Eine gute Datenlage ist jedoch notwendig: Zum einen, um den besonderen Unterstützungsbedarfen im hohen Alter zukünftig besser gerecht werden zu können. Zum anderen, um Lösungsansätze für sozialpolitische Herausforderungen wie der sozialen Sicherung im Alter sowie im Hinblick auf eine Generationengerechtigkeit entwickeln zu können. Schließlich, um negativen Altersbildern und Vorurteilen über die Lebensqualität im hohen Alter empirisch fundiert entgegenwirken zu können. Die Studie "Hohes Alter in Deutschland¿ (D80+) ist eine bundesweit repräsentative Querschnittsbefragung der hochaltrigen Menschen in Privathaushalten und in Heimen. Sie wird vom Bundesministerium für Familie, Senioren, Frauen und Jugend (BMFSFJ) gefördert und gemeinsam vom Cologne Center for Ethics, Rights, Economics, and Social Sciences of Health (ceres) und dem Deutschen Zentrum für Altersfragen (DZA) durchgeführt. Die Studie vereint Perspektiven der an den beteiligten Institutionen verorteten Disziplinen wie Soziologie, Psychologie, Versorgungswissenschaften, Gerontologie und Medizin. Im vorliegenden Band werden zentrale Befunde u.a. zu den Themenbereichen Soziale und Digitale Teilhabe, Gesundheit und Versorgung, sowie Werte und subjektives Wohlbefinden vorgestellt.
Normalizing an American Right to Health argues against the conventional wisdom that a U.S. right to health is out of reach. It shows that the necessary change is not extraordinary but familiar and that the law has already laid considerable groundwork in ordinary statutes and case law. The book moves from the descriptive task of showing where a right to health already exists in our legal corpus to the prescriptive goal of showing how we could feasibly and meaningfully expand the right through ordinary policies that are widely used in other domains, including impact assessments and state-sponsored reinsurance.
What does it mean to be ethical as a coach? Just how ethical are you? How does ethics influence your coaching and how do you know if you are engaging in ethical practice? This important and eye-opening volume provides critical insight from the thought leaders in coaching across a full range of ethical issues.Presented in four parts, this new handbook works to guide the reader towards ethical maturity to strengthen their practice, though examination of theory and thought provoking practice examples. Part 1, Foundations of Ethics in Coaching, provides a detailed overview of the basic principles of ethical coaching. Part 2, Ethics in Coaching Practice, details specific examples of where you will need to think ethically and be guided by good ethics within your practice. Part 3, Pushing the Boundaries of Ethical Thinking in Coaching, dives deeper into topics such as race, managing mental health, the environment and marketing. Part 4 consists of twelve case studies which encourage you to think about putting the theory of the book into practice.The Ethical Coaches' Handbook will provide ideal support to students, practitioners and coach educators looking to deepen, broaden and enhance their ethical coaching practice.
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