Rare Cancer Agenda 2030 - Europe Rare Cancers Europe - Bog

RARE CANCER AGENDA 2030
Ten Recommendations from the EU Joint Action on Rare Cancers
1. Rare cancers are the rare diseases of oncology
2. Rare cancers should be monitored
3. Health systems should exploit networking
4. Medical education should exploit and serve healthcare networking
5. Research should be fostered by networking and should take into
account an expected higher degree of uncertainty
6. Patient-physician shared clinical decision-making should be
especially valued
7. Appropriate state-of-the-art instruments should be developed in
rare cancer
8. Regulation on rare cancers should tolerate a higher degree of
uncertainty
9. Policy strategies on rare cancers and sustainability of interventions
should be based on networking
10. Rare cancer patients should be engaged