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A care home in lockdown isn't the best place for a big birthday, but Matty wants to mark her centenary in style. But hidden histories haunt her: the child she gave up for adoption and her ancestors' role in the transatlantic slave trade.
Die angeblich unsichtbaren Symptome sind für uns, die an der neurologischen Erkrankung Multiple Sklerose erkrankt sind, ganz und gar nicht unsichtbar! Wer von uns MS-Betroffenen hat nicht schon so oft hören müssen: "Man sieht Ihnen ja gar nichts an!", "Sie sehen so gesund aus." Deswegen schrieb ich dieses Buch, um ein Sprachrohr für all die Menschen zu sein, die sich täglich mit der Unsichtbarkeit auseinander setzen müssen und das Wichtigste: Angehörige, Interessierte und Neubetroffene aufzuklären und zu vermitteln, helfen, informieren und das Lachen trotz unsichtbarer Last nicht zu verlernen. Nach dem Motto: Wir, die an der MS erkrankt sind oder wie ich immer sage ¿anders gesund¿ sind, müssen die unsichtbaren, auf den ersten Blick nicht greifbaren Krankheitszeichen, für unser Umfeld sichtbar machen! Die Autorin beschreibt in ihrem Buch die wichtigsten unsichtbaren Symptome, wie Spastik, Fatigue, Depressionen, Nystagmus, Neuralgien, Ataxie, Tremor, Harn- und Darmstörungen oder erklärt: Plasmapherese, Neuroplastizität, Ernährungsformen und vieles mehr. Lesen Sie ihre Geschichte mit der Unsichtbarkeit, oder über alternative und unterstützende Therapien und Maßnahmen bei MS. Oft werden unsichtbare Symptome im Laufe der Krankheit sichtbar. Auch diese kommen im Ratgeber zur Sprache. Die Texte werden mit Collagen unterstrichen. Weitere Bücher auf dem Blog der Autorin: www.frauenpowertrotzms.de
Fuelled by personal experience and interviews with clinicians and families, this compassionate book explores the realities of caring for a child with complex medical needs. It provides a vital insight into different parents' experiences to help medical professionals understand the roots of conflict and work with families to support patients.
Sometimes your own family isn't enough. Growing up different is never easy, but Michael, a deaf young man from a small town, knows that he must find his true family beyond his biological one. He struggles and fails to find others of his kind until he attends college in New York City.There, we meet a variety of people from a deaf gay family of sorts: Eddie, an older accountant aching for love; Lee, an effeminate dishwasher with a pronounced weakness for red-haired men; Vince, a charismatic dancer who lives intensely no matter the state of his health; Neil, a brooding woodcarver who becomes a deaf woman's obsession; Stan, a lanky stock boy at the A&P on Christopher Street; Ted, a hard-of-hearing college student with ambivalent feelings about the deaf community; and Rex, an ASL interpreter who avoids his own emotions during the early days of the AIDS epidemic. It is through these people that Michael, no longer a smalltown boy, begins to create a new family of his own. Taking place from 1978 to 2003, his story will open your eyes and heart to what it means to be different in an indifferent world. The first place winner of the Project: QueerLit 2006 Contest, this second edition features a new foreword by the author.
Die letzte "intakte" Lebensphase war diePubertät, mein Jugendalter. Punk-Rock,Skateboard und Alkoholkonsum.Statt glücklicher zu werden, zog ich michzurück. Der Rückzug brachte mich in dieWelt der Bücher und Philosophien. Ichfand mich in einer neuen Welt, ohne jehinein gewollt zu haben.Die Kapitulation zeigte sich in meinerBereitschaft, mir professionelle Hilfe zuholen. Der Weg aus diesem Albtraumführte mich durch Scham, Schuld undPeinlichkeit. Einen Ausweg, wie ich ihn mirvorgestellt hätte, gab es nicht. Bevor ich darauskam, gab es noch einiges zu erleben.
This timely book explores the spatial and social injustices within our streets, malls, schools, and public institutions. Taken-for-granted acts like going for a walk, seeing an exhibition with a friend, and going to school are, for people with disabilities, conditional or precluded acts due to exclusion by design.
This book is a critical disability studies examination of the lived experience of chronic pain, engaging with and making a significant contribution to crip theory and the concept of 'crip time'.
Radical, accepting and kind. This is the neurodiversity paradigm. This guide challenges your assumptions of who is and isn't neurodivergent with own voice narratives reflecting on intersections of race, gender and sexuality and directly opposes the pathology paradigm. At its heart, it is a rallying cry to be a neurodiversity affirming society.
Many of us who participate in adventure sports have wondered: "What if the worst really happened? What if everything I have held so dear were to be taken away in the blink of an eye: my way of living, my job, my social life ... everything!?"An inspiring tale of a remarkable recovery from a hugely challenging, life-threatening accident.
Social Research and Disability argues that the contemporary rules of sociological methods outlined in numerous research methods texts make a number of assumptions concerning the researcher including ambulance, sight, hearing and speech. In short, the disabled researcher is not considered when outlining the requirements of particular methods. Drawing upon these considerations, the volume emphasizes how disabled researchers negotiate the empirical process, in light of disability, whilst retaining the scientific rigour of the method. It also considers the negative consequences arising from disabled researchers' attempts at "passing" and the benefits that can emerge from a reflexive approach to method.This innovative and original text will, for the first time, bring together research-active academics, who identify as being disabled, to consider experiences of being disabled within a largely ableist academy, as well as strategies employed and issues faced when conducting empirical research. The driving force of this volume is to provide the blueprints for bringing how we conduct social research to the same standards and vision as how the social world is understood: multi-faceted and intersectional. To this end, this edited collection advocates for a sociological future that values the presence of disabled researchers and normalises research methods that are inclusive and accessible.The interdisciplinary focus of Social Research and Disability offers a uniquely broad primary market. This volume will be of interest not only to the student market, but also to established academics within the social sciences.
This book explores the complex, evolving relationships between men, masculinities and social welfare in contemporary context.
This book explores the opportunities and challenges people with disabilities experience in the context of digital games from the perspective of three related areas: representation, access and inclusion, and community.
This edited volume explores blindness as a construct with which we the contributors engage as part of our social existence and/or academic research. Irrespective of eye conditions, or the lack thereof, blindness is an understanding at which we have all come to arrive. On the way to this conceptual point, which is in any case unlikely ever to be fixed, we have passed or visited many formative cultural stations.In the terms of autocritical disability studies (i.e. an explicitly embodied development of critical disability studies), these cultural stations include key moments in education and training; the reflective pursuits of philosophy, aesthetics, and cultural theory; literary works such as autobiography, novels, short stories, drama, and poetry; visual texts ranging from photography to postage stamps; technological developments like television, computer applications, and social media; value systems defined by family and/or religion; and the social phenomenon of hate and war. Each chapter in this volume engages with two of these cultural stations; some ostensibly if not profoundly positive or indeed negative and some that contradict each other within and across chapters.This book will be of interest to all scholars and students of disability studies, sociology, education, and health.
Marking a new direction for disability sport scholarship, this book explores cutting-edge issues and engages creatively with contemporary approaches to research in this important emerging discipline.Featuring contributions from leading and up-and-coming scholars around the world, the book's wide-ranging chapters offer novel perspectives on the relationship between theory, method, and empiricism in disability sport research and highlight how researchers can be both innovative and informed when entering the field. It also explores methodological considerations when conducting disability sport research, including social, cultural, and political reflections of the research process from disabled and non-disabled academics. This much-needed resource supports disability sport scholars in developing a conceptual grounding in the subject and establishes a space for intersectional accounts of sport and physical activity which challenge homogenous understandings of disability.This book is essential reading for any student or researcher working in disability sport, adapted physical activity, or adapted physical education, and a valuable reference for anybody with an interest in the sociology of sport, disability studies, cultural studies, the body, or research methodology.
This provocative and challenging book argues for the vital importance of critical self-reflexion in the field of adaptive physical activity (APA).
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