Fifty-Seven Fridays - Myra L Sack - Bog

"An inspiring story of hope, community, and love-in place of unrelenting grief. Myra Sack is a new mom, married to Matt, the love of her life. They live in Boston because Matt's residency in internal medicine takes them there. Myra is 30 years old, completed her MBA. They've bought a house. Life is unfolding beautifully. Until one day their beautiful year-old daughter Havi is diagnosed with a fatal neurodegenerative disease called Tay-Sachs. Then Myra and Matt discover that, despite extensive pre-conception genetic testing, an error was made, making this fatal diagnosis possible. Havi has only a year to live. Against all advice and norms, Myra and Matt decide to celebrate Havi's short life rather than intervene to prolong it. They vow to show her as much of the world as they can, embarking on a journey that begins on the California coast and continues back to Boston, surrounded by friends and family who relocate to be in Havi's orbit. Tapping their Judaism, they transform Friday night Shabbats into birthday parties-'Shabbirthdays'-to replace the birthdays Havi will never have"--