Brittle Joints - Maria Sweeney - Bog

Starred Review from Publishers Weekly. "It's a revealing visualization of a rare, 'depersonalizing' condition and how Sweeney finds 'drops of disabled joy whenever I can.' Sweeney's subtle and elegant art reflects the nuance of her moment-to-moment struggle."An evocative and heartfelt graphic memoir about the challenges of living with a progressive disability. When Maria Sweeney was young, she kept count of her broken bones. As she grew older, she stopped. Living with Bruck syndrome, a rare progressive condition that gives her very brittle bones and joint abnormalities, meant that those numbers climbed and climbed. Today, she struggles every day, living in an often-inaccessible world. As an ambulatory wheelchair user, ordinary actions like entering a building, sitting at a café, or holding a cup of tea can be drastically different for her than for others. With lush illustrations, Maria tells the story of her lifelong struggle to obtain care in an increasingly complicated and disinterested US healthcare system. But for every step that presents a struggle, there's also beauty, friendship, art, and growth. She documents the relief she's found in alternative therapies, particularly medical marijuana; in loving community and chosen family; and in nature and her creative practice. A powerfully understated critique of our modern world, Brittle Joints offers a generous, expansive look at how to live and love amidst the challenges of survival.