Last Dance at the Savoy: Life, Love and Caregiving for Someone with Progressive Supranuclear Palsy - Kathryn Leigh Scott - Bog

When Kathryn Leigh Scott's husband was diagnosed with progressive supranuclear palsy (PSP), a neurological disease for which there is (so far) no cure, it was a devastating time for both of them, not least because so little is known about the cause or treatment of a disease that affects some 20,000 Americans, a number similar to that of Lou Gehrig's disease (ALS).Last Dance at the Savoy is both a personal story about Scott's husband, Geoff Miller, the founding editor of Los Angeles magazine, who lived life fully despite having a terminal illness, and a sharing of her insights on dealing with the day-to-day issues of caring for someone with a progressive neurological condition. Scott "often yearned for someone to figuratively take my hand and walk with me through the difficult times; I hope through this book I can reach out to you with encouragement and practical advice."Last Dance at the Savoy includes a resource guide that provides facts about prime-of-life diseases; contact information for support organizations, research studies and clinical trials; where to find handicap products and equipment; and recommended caregiving publications and family conferences.Contains a foreword by Yvette Bordelon, MD, PhD, a neurologist at UCLA whose clinical work involves the diagnosis and treatment of movement disorders. "Scott provides a remarkably personal portrait of a romance that transcended tragedy...Poignant, candid and almost painfully intimate, Last Dance at the Savoy is like having coffee with a close friend and discussing her recent loss. You'll only wish you could take her hand while she talks."―Examiner.com